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        <Name>The Costs for Family Caregivers Continues to Rise</Name>
        <Summary>Doing the right thing is an expensive proposition</Summary>
        <Description>&lt;p&gt;In the United States nearly a quarter of our multi-generational families have a family member working in a job that they never trained for, never asked for, and have never been paid for. That job is the informal family caregiver.&amp;nbsp; It is estimated that there are 34 million Americans providing care for older family members and friends.&lt;/p&gt;&lt;p&gt;One might assume that because this care is provided by family and friends, it&amp;rsquo;s free &amp;ndash; but that&amp;rsquo;s not the case at all. Considering actual financial costs alone, a recent study of 1,000 informal family caregivers found that the annual cost was $5,500 dollars. And if you were caring for a family member from afar, let&amp;rsquo;s say from another state or distant community, the average cost was $8,728 dollars per year. The money goes toward direct medical expenses; household items, including food; extra help and travel; and home repairs and basic day-to-day equipment. &amp;nbsp;&lt;br /&gt;&lt;br /&gt;The money comes from a variety of sources. Half of the family caregivers cut back on hobbies, leisure activities and vacations. One third dip into savings and defer major purchases for themselves. And a quarter cut back on their own groceries and seeing their doctors to cover the costs. &lt;br /&gt;&lt;br /&gt;It&amp;rsquo;s not surprising then, that as families and friends deprive themselves while caring for others they often become sick as they struggle to do the right thing. In the end, they often so seriously compromise their own health that they, too become victims of disease. Studies have shown that a large number of surviving spouses die within a year of the loss of their loved one. The mortality rate is more than six percent among the men and 3.5 percent for the women.&lt;br /&gt;&lt;br /&gt;The fate of surviving spouses, many of whom were primary home-based caregivers for their ill loved ones, emphasizes society&amp;rsquo;s need to provide better social network support for family caregivers. For more statistics and analysis of the issue, please watch this week&amp;rsquo;s video (embedded with this blog post) or read the full transcript, below. Then tell us how you feel: Should our caregivers be compensated in some way? If so, how? What kind of changes to our health care system are needed? Please join the discussion by posting a comment!&amp;nbsp; &lt;/p&gt;&lt;p /&gt;</Description>
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                  <Title>Alliance for Aging Research</Title>

                  <Synopsis>Are we ready for the burdens of our aging population? Perhaps not, according to the Alliance for Aging Research, which published a report titled "Medical Never-Never Land: Ten Reasons Why America is Not Ready for the Coming Age Boom."</Synopsis>

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                  <Title>National Alliance for Caregiving and Evercare</Title>

                  <Synopsis>With their joint study "Caregivers in Decline," published in 2006, the National Alliance for Caregiving and Evercare provided a troubling look at the health issues facing caregivers.</Synopsis>

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            <Description>&lt;p&gt;What a timely comentary.&amp;nbsp; I've unexpectly become my 55 year old husband's caregiver.&amp;nbsp; While I have continued to work outside of the home, I have reduced my hours so that I can provide care and meet our many doctor's appointments.&amp;nbsp; I am very fortunate that my employer (local health department) allows me the flexibility to take care of things at home.&amp;nbsp;&amp;nbsp; Financially, we are fortunate that my husband's employer offers short-term disabilty benefits (70% of his salary) but with hospital bills and other obilgations, we are tightening our belts and delaying expenses such as home maintenance.&amp;nbsp; Our lives are difficult right now but the support we've received from family and friends has been tremendous.&amp;nbsp; &lt;br /&gt;&lt;/p&gt;</Description>
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           <Description>I am a familty caregiver I gave up my life to care for my Dad and it has turned into a long process of caring for my Dad ,&amp;nbsp;my uncle and now my Mom . This was just going to be temporary but it has lasted for 15 years so far . I am one of seven living children&amp;nbsp; . But as the saying goe's there is alway's the one willing to step up and do the right thing .I am it . I have gave up my life as I would have liked for it to be . I am the mother of an 86 year old baby at this time she requires total care&amp;nbsp;.i had a good life at one time very good I would say , I had a job ,&amp;nbsp;a home&amp;nbsp; ,and a&amp;nbsp;car, three girls that I adored&amp;nbsp; two dogs&amp;nbsp;, a cat, &amp;nbsp;and health insurance . I was a single Mom and I loved my life but all that has changed tremendously . I still&amp;nbsp; Job&amp;nbsp; that I don't get paid for ;have a car that is very old 92 model , a home that is in need of repair alway's&amp;nbsp;&amp;nbsp;and I have an 86 year old Baby to care for that I can't pick up and put into the car to go to the store or anything else . I am dependant on the mercy of other human being for health care .I can't go for a walk without someone who is able to care for her in my place . I would love to work but i can't afford the kind of sitter she would need . I try to take care of Mom just as I would like to be cared for if I was in that position . There are a lot of community agencies now that help but it does not cover everything that is needed and the cost of her medical care for Office visit I have to pay because her Doctor opted&amp;nbsp;out of&amp;nbsp;accepting Medicaid because it take's so long for it to payand I am not allowed to file it because I am not aw doctors office . I do mind that I am expected to live like this because I cannot&amp;nbsp;not take care of her because my Dad asked me too and&amp;nbsp; she would last very long in a nursing home and then we would have to give up the house and since I gave up my house to do this ; it is quite a situation to even think about .. I could go on and on but soon the baby boomers are going to see alot of what I am going through because it will be there turn for decling health which if we live long enough does happen .It would be nice to have freedom again I never though it would be so very hard to do what my parents did without thinking in thier day . Has the world become so preoccupied with acheiving thier dream that they forget to take a closer look at what is down the road for them when it is thier turn to need help and there is noone there to provide it . It take's your life right out of you to do this so very long with no financial help and the health care that I have is because someone somewhere saw need for people like me . &amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;.&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp;&amp;nbsp; </Description>
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           <Summary>Patsy's story illustrates what's wrong with our system</Summary>
           <Description>&lt;p&gt;As Patsy so well describes, the life of a family caregiver is not an easy one. Beyond the physical and mental wear and tear, the financial sacrifices, and the dreams deferred, hers is a world of isolation.&lt;/p&gt;&lt;p&gt;The saddest element is that it does not need to be this way. Patsy should be embaced by a network of caregivers. She should be protected from isolation, exhaustion, and her own medical decline. She should be encouraged and rewarded for responding to a desparate human need and being loyal to her family. She is a good and decent person. She deserves better from her health system, from her community and from her country.&lt;br /&gt;&lt;br /&gt;&lt;em&gt;Mike Magee&lt;/em&gt;&lt;br /&gt;&amp;nbsp;&lt;/p&gt;</Description>
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           <Description>&lt;p&gt;I too am an exhausted caregiver. I have given 25 years to my 25 year old severly handicapped son. He doesn't walk, or talk, eat or do anything for himself. I do it all. My husband and I divorced after 23 years and he does not provide any help whatsoever, suppose to be paying me alimony but has refused to do that, I am all alone, except for my 70 yr old mom that tries to help when she can. I have no friends and no contacts other than doctors and such and all I do 24/7 is take care of him. I am only 46 and my life seems to be over. Its a hard road but I can't live without him now, he is my everything. thanks for listening&lt;/p&gt;&lt;p&gt;Leola&lt;/p&gt;</Description>
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           <Description>&lt;p&gt;Leola-&lt;br /&gt;&amp;nbsp;&lt;br /&gt;Thanks you for sharing your thoughts with me. You truly do deserve God's blessings for your service, committment and loyalty. What is truly regrettable is the social isolation you have suffered while &amp;quot;doing the right thing&amp;quot;. Sadly, you are not alone in your experience, but are made to feel alone. Part of what we need to do is connect you to others, include you fully as a member of the health care team, and reform our system to strengthen the safety support network, so that you might both be true to your son and be true to yourself. One of the many things I've learned from Gail Hunt at the National Alliance for Caregiving, is that one of the most challenging aspects of caregiving is caring for the caregiver herself. That has to change! We can do better and must! At least for now, you should know that you and many like you are in our thoughts and prayers.&lt;br /&gt;&amp;nbsp;&lt;br /&gt;&lt;em&gt;Best, Mike Magee&lt;/em&gt;&lt;/p&gt;</Description>
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           <Description>Our nonprofit organization Independence&lt;em&gt;First&lt;/em&gt; employs many family caregivers and because of the difficulties but also the strength of caregivers, we developed a new resource to remind all of us, why we do what we do and many others are doing it too.&amp;nbsp;&amp;nbsp;&lt;u&gt;Check out resources, anecdotes, imagery and&amp;nbsp;Caregiver Bill of Rights in&amp;nbsp;&amp;quot;A Celebration of Caregiving:&amp;nbsp; Portraits &amp;amp; Stories.&amp;quot;&lt;/u&gt; </Description>
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